Being Woken up Suddenly Can Wreck Me for Days

Person lying in a hotel room bed looking as though they are having trouble sleeping or like they just woke up from a noise. Text reads, "Being woken up suddenly can wreck me for days".

This is another issue where I’m not sure if this is autistic thing or a “me” thing. Being woken up suddenly messes with me so badly!

It’s a terrifying, disorienting shock when, say somebody rings my doorbell or pounds on my door, and I’m still asleep in bed.

If I’m forced to wake up, get up, speak, and/or interact before I’m fully ready, it makes me angry, anxious, confused, and fearful.

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The best way to improve communication with your autistic loved one is to understand how your autistic loved one’s mind works! Intentions, motivations, and personal expressions (facial expressions or lack thereof, body language, etc.), are often quite different in autistic people than they are in neurotypical people.

Experience a better understanding of your autistic loved one by reading books about life from an autistic perspective as well as stories that feature autistic characters. You’ll have so many “Ah ha!” moments and start seeing your autistic loved one in a different light (and you’ll have a better understanding of their behaviors, which you may have been misinterpreting up until now).

Books I recommend for a better understanding of your autistic loved one:



Even if it’s not a really sudden wake up but ANYTHING that interrupts my sleep, my anxiety and feelings of disorientation can skyrocket for days.

I think this may have to do with sensory overload, task interruption, autistic inertia, anxiety, PTSD, OCD, and something else do with my autistic brain, but I’m not sure of the particulars.

If your autistic loved one struggles to wake up, they could be experiencing similar emotions and sensory challenges.

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