The Biggest Mistake You Can Make With an Autistic Person Is to Assume We Know What We Did Wrong

The blog post I wrote about how to tell an autistic person we’ve upset you and be understood resonated with so many, I wanted to do a follow-up.

One of the biggest mistakes you can make with an autistic person is to assume they know what they did to offend you and respond accordingly.

I believe this is one of the PRIMARY CAUSES of PTSD in autistic people.

In our eyes, when we’re spending time with you, we’re just doing our best to relate, fit in, and be accepted. We aren’t even imagining ways to hurt or offend you!

(That isn’t to say autistic people are angels, and we never do anything offensive on purpose, but that’s not the point of this particular post.)

So, if you feel offended by something your autistic loved one says or does, and you respond the way you would to a person who knows full-well that what they’ve said or done has upset you, you will scare the living crap out of them!

This Is What It’s Like From Our Perspective

Imagine you and a friend are relaxing with a nice cup of tea, having a pleasant conversation, when you decide to bring up a benign topic like the weather.

All of a sudden, they give you a dirty look, scream at you, throw the cup against the wall, and storm out of your house.

How would you feel?

Lost? Confused? Hurt? Angry? Terrified? All of the above?

That is EXACTLY what it feels like when a neurotypical (non-autistic) person responds to what they perceive to be a purposefully insulting comment full-throttle.

It is DEVASTATING. And, at this point, whether we are being screamed at or spoken to, it will not matter. At that point, we’ve already shut down to protect ourselves. It’s an automatic mechanism that can’t be stopped.

Also, if you try to ask us why we said or did the thing later, chances are, we won’t even recall what was said or done because we’ve blocked it out because sudden and loud reactions cause shutdowns and meltdowns.

(Article continues below.)

The best way to improve communication with your autistic loved one is to understand how your autistic loved one’s mind works! Intentions, motivations, and personal expressions (facial expressions or lack thereof, body language, etc.), are often quite different in autistic people than they are in neurotypical people.

Experience a better understanding of your autistic loved one by reading books about life from an autistic perspective as well as stories that feature autistic characters. You’ll have so many “Ah ha!” moments and start seeing your autistic loved one in a different light (and you’ll have a better understanding of their behaviors, which you may have been misinterpreting up until now).

Books I recommend for a better understanding of your autistic loved one:

The Formula for Successfully Communicating Your Hurt Feelings to Your Autistic Loved One

So, I’ll give you the formula I gave in the last post for communicating to an autistic person what they’ve done or said that seems offensive to you without traumatizing us and frustrating yourself.

Because, 9 times out of 10, we have absolutely no idea what we’ve said or done to upset you.

Here it is:

1) Take a deep breath. Remember, more likely than not, we did not just purposely try to upset you.

2) Make sure you have our full and undivided attention, and tell us, in a calm and even tone, that you have something important to tell us.

3) Make sure we are alone together or off to the side, so we are not distracted or feeling sensory overwhelm.

4) Tell us what we did or said that offended you.

5) Tell us WHY it offended you and, where applicable, why it is inappropriate to do or say.*

*An answer to the question “Why” is absolutely critical to our understanding. Do not leave this out under any circumstances.

6) Tell us what we could have done or said instead, and why that is preferable.

7) Reassure us that we are OK and that our relationship with you is still OK.

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5 Responses

  1. gail peterson says:

    what do you with a husband who thinks your autistic son can turn it off and on

    • jaimeaheidel says:

      Oh, goodness! It sounds like your husband needs to better educate himself on neurodiversity. If I can help, I’d be glad to. Let me know. I do private consultations.

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